About This Blog

I am a SAHM to a baby boy, have my Masters in Public Health (my interest being in patient advocacy), and am an active volunteer with the National Marfan Foundation.  I co-coordinate the NMF’s teen program and run a local group for other Marfan patients and their families.  In my spare time I’m a medical drama TV junkie, enjoy gardening and cooking, and squeeze in time for reading and crafts when I can.

This blog is about my personal experience with Marfan, how having Marfan affects my roles of wife and mother, and my general thoughts on motherhood.

The NMF defines Marfan as “a genetic disorder that weakens multiple body systems, including the heart, blood vessels, bones and joints, lungs and eyes.” For a more detailed description, check out my Marfan 101 entry.

This blog is not intended to take the place of medical advice from your doctor.  Always consult a physician with questions about your health.  The National Marfan Foundation can provide you with information on Marfan-knowledgeable doctors.

This blog is also not affiliated with the National Marfan Foundation.

4 responses to “About This Blog

  1. It would be really neat if you could add a description about what exactly Marfan is. I google searched and found some great descriptions…I wonder if I’m the only one who had never heard of it before…

    It sounds like you’re doing some really great things! I’m so inspired by people like you who work so hard to help the way you do. Amazing.

  2. Thanks! I actually wrote a blog post describing Marfan, but I’ve realized it’s been lost in the shuffle. I’ll direct a link to that entry from this page. 🙂

  3. I landed here looking for the Marfan info. It would be great if you redirect us to the offered page.

    BTW, I’ve discovered your blog thanks to a comment you left at bloggeratto. com

  4. Maya,

    Hello! This is Kelly Collins, I don’t know if you remember me but we went to school together back in Granville. A long time ago! I don’t think i ever knew you had Marfan way back then. Now I am going to a school in southern Ohio writing a report for a genetics class about Marfan Syndrome and I saw some pictures from your blog online. I just wanted to send you a message to say hello with blessings! I like your blog. You look like you are well, and happy.

    Take Care!
    Kelly

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